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Dec 22 2016

Mama Bear Vent!

Ok, I don’t rant often, but …

As a mother of a child who has severe food allergies, it just doesn’t make sense to me why others do not take it seriously. Keep in mind, I manage a school, so I am able to see both sides of the coin; how hard is is to regulate, and how seriously we need to take it in order to keep our students safe.

My 5th child was diagnosed with severe food allergies when she was just five months old. It changed our world. She was literally the first patient her pediatrician had ever had with food allergies. He had no idea how to deal with it, but by the time she was eight, he was an advocate of educating others about them. When my daughter was young, it was nearly impossible to even find someone who would watch her because they were afraid of her food allergies. I get it. I remember the first time I left her alone overnight…that was when I finally agreed to a cell phone! It was scary.

I remember putting her in school for the first time, in the 2nd grade. THAT was scary. What if someone touched her after they had eaten peanuts? What if they breathed on her? I remember reading an article once about a 15 year old girl who died from of a kiss from her boyfriend who had eaten peanuts earlier in the day; she never told her boyfriend she was allergic.

From a very young age, I worked hard to teach my daughter to advocate for herself. Don’t touch things that don’t belong to you; don’t hold hands with other students. Don’t kiss anyone or let them kiss you. Don’t share food or drinks. Don’t eat anything if you haven’t checked yourself to make sure it is safe; not everyone understands how to read food labels for ingredients. It’s too dangerous.

Today, more people are aware of food allergies than every before. Food allergies affect 1 in every 13 children in the US. There are now laws mandating that food be labeled clearly. More and more facilities/vendors are peanut free; or at the very least, have a space that is peanut free. Restaurants are more aware of what they are serving than ever before.

But…when it comes to air travel…..

I remember the first time we ever traveled by air with my daughter. We carried her onto the plane, wiped down everything she could come into contact with, and put a crib sheet over the seat she was sitting in. We flew Southwest because they did not serve peanuts on the flight that she was on. We tried to take the first flight out to make sure it was as safe as possible, but if we could not, the flight attendants were always nice and checked for any loose peanuts when we flew with them.

We haven’t flown in a few years. But recently, one of our dear friends booked a flight for her as a gift for her 16th birthday present. I was not too concerned since their website states, “Inflight food offerings may contain trace amounts of nut ingredients, or may have been processed in facilities that also process nuts. In addition, we are unable to prevent other passengers from bringing nuts and/or products containing nuts onboard our flights.” To me, this meant that although they could not prevent others from bringing nuts on the plane, they would only be serving foods that may contain trace amounts. So, as long as she doesn’t eat a nut, or someone next to her doesn’t touch her after eating nuts, she would be ok.

Not so the case.

I will say that their staff was very nice for her flight to her destination. They allowed me to go to the gate with her. (This is at their discretion since she is now 16.) Once we arrived at the gate, we informed them of her peanut allergy and that she was carrying epi-pens and she would be wiping down her seats. They were very nice and let her board first. I stayed to make sure she got off safely.

And a good thing! Because the next thing I knew, they were calling me over and letting me know they were going to de-board her from the plane. Their reasoning was that her peanut allergy was too severe and they were contacting medical to see if they would approve the flight. Twenty minutes later, she got approval to fly. They put her on the back seat and the flight attendants took excellent care of her.

And they served peanuts on the flight….not food with trace amounts, but the actual peanuts themselves.

Fast forward to today:

A) The man at check-in refused to let an adult go to the gate with her even though the flight was delayed because she is 16. He was also made aware of her peanut allergy and he said he would let them know AND that he had changed her seat to make it more safe for her.

B) He didn’t tell anyone AND he didn’t change her seat.

My  vent? I understand policy and procedure. It’s not the airline’s fault my daughter has a peanut allergy. HOWEVER, the airlines should very clearly state on their website that they SERVE peanuts on their flights so that their customers can make INFORMED decisions before they hand over their money AND THEN get kicked off of the flight because it isn’t safe.  Family kicked off flight over peanut allergy

My bigger vent? With food allergies ever growing, why aren’t they taken more seriously? Public schools in Nevada now have to carry epi-pens just in case a student goes into anaphylaxis. My daughter’s school FASA has had to use the school epi-pens multiple times on students who do not carry an epi-pen or did not even know they needed one.

One would think that with the millions of people that fly every day, the airlines would take peanut allergies more seriously and just not serve peanuts, or at the very least, on flights that have customers with peanut allergies on them.

I am an even bigger fan of Southwest airlines these days. They have no problem announcing to the other passengers that there is a passenger with a severe peanut allergy on the flight and that no peanuts will be served; and they offer an alternative (pretzels) when it comes to these flights.

Meanwhile, after four hours of sitting in an airport by herself because she is considered to be an adult, my daughter’s flight just got cancelled. She’s not old enough to book a hotel room by herself, and she won’t be flying out until tomorrow afternoon at the earliest.

Thank goodness for fantastic friends who have no problem waiting in the freezing cold until the airline could finally make a decision about the flight. Thank you, fantastic friend, for waiting as she makes her way out of the airport to the warmth of your car and I’m sure, a warm hug, because you are careful of her food allergies.

 

Written by Hope · Categorized: Drama Queen, Food Allergies/Gluten Free, Health, Just Being Real, Late Night Ponderings · Tagged: drama queen, food allergies, friendship, parenting

Aug 15 2010

Camp and Cuddles

The Drama Queen went to her first ever Bible Camp. It was out in the woods and without any family member for a whole week. We were a little nervous, especially considering her food allergies, but I've been up to the camp a few times and knew that they are a nut free facility…and that the chef would make sure to only feed her things that she is not allergic to…So…I managed convince her father that she'd be safe and away she went!

One of the things I love about this camp is that they post photos of your children doing various activities at camp. I got some great shots of the Smart One last year! Unfortunately, not so much the Drama Queen.

Adventure Mountain
She's in the green in the background. She looks busy…I asked her if she had fun and she stated a big, "yeah!" She talked about the lake and the walks that were four miles long (That would be why she has the name, "Drama Queen"…it wasn't four miles.) She talked of snacks and the food…and some not so good food…ha ha. She absolutely loved it.

And finally, I found a picture that proved it just a little bit!

Adventure Mountain_0001
Dancing on a table…that's my girl! Whew…it's always good for a mom to see actual proof of her child having fun when she isn't there to share in on it!

The exhausted child came home on Friday and crashed…literally on top of me! B-boo was cracking up, she looked so funny! We had time for cuddles in the morning as she talked more about her day at camp…then went back to sleep. And more cuddles again this morning before she went off with her Daddy.

Ah…there's just nothing better for a girl than camp and cuddles to come home to!

Written by Mama Vivas · Categorized: Drama Queen, Faith, Family · Tagged: camp, cuddles, food allergies

Aug 27 2009

The Drama Queen

Isaface(rev 1) Or, as we like to say, "And then there was…"

Yup, that's her. Our very on Drama Queen. A brilliant ray of light, full of energy that refuses to be told she can't do anything. Her name, roughly translated, means,

"A beautiful rainbow we don't deserve."

Yes, that about sums her up!

After a complicated pregnancy, the Drama Queen arrived two weeks early, on the only day that week that was not someone else's birthday. Within a couple of weeks, we knew something was wrong with her. For the next five months, we'd travel back and forth to the doctor over and over, trying to get them to figure out what was it was that was making her so sick. Finally, a diagnosis. She was suffering from severe food allergies. Severe enough to land her in the hospital on more than one occasion…and for me to get over my fear of needles since I was the one that was her main care giver.

As we began a whole new lifestyle of eating, I worked hard to educate myself on the in's and out's of food allergies and to try out new recipes. Not easy when you can only cook with a handful of ingredients: chicken, turkey, rice, potatoes, carrots, broccoli, apples, tapioca, salt and pepper. Yes, I'm serious.

When she was finally able to have soy, I was ecstatic! Adding in beef and beans later was awesome. And then, we could finally have melons…oh, how happy we were! Yes, we. Because of the severity of her food allergies, she could not have formula. This meant that I had to follow a strict diet, too. And so it went.

These days, she's allergic to peanuts, tree nuts, eggs, apples and dairy. Her brother, the Smart One, is on a gluten free, nut free diet, so sometimes cooking for the two of them together is hard; but we manage to have some pretty decent meals anyway!

So what is it about the Drama Queen anyway? Well, she has a pretty high tolerance for pain, kind of like her momma. Translated into English, this means that:

When she says a penny is stuck in her throat, yet doesn't act like it, you take her to the hospital anyway. And they don't believe you until an x-ray proves it and then they do surgery.

When a VCR lands on her feet and nearly slices off two of her toes, and she has to have them stitched back together, she can still go right outside and run around instead of sitting for the next week.

When she goes into anaphylaxis she will try and go about her play in spite of the swelling and hives.

When 300 pounds of plexi-glass land on her foot and she can walk anyway, you take her to the ER. Odds are, it's broke. And when they send you away anyway and tell you it can't possibly be broke because she's fine, you nod your head and drive away…and then come back again when they call you to tell you that the x-ray showed it was indeed broke, after all. It also means that she'll go through a boot thing once a week for three weeks, destroying them, until you finally give up and tell her to just wear her sneakers and try not to make it worse. Oh, and you beg her not to show people where it's broke by moving it around. That's just gross.

When she flies off of a swing that she wasn't supposed to be on anyway and lands on a two-by-four in an anthill, you take her to the ER. And even though the nurse says it can't possibly be that bad, you scream for a doctor anyway, because you've seen it, and you know. And then you take her home with 17, yes SEVENTEEN staples in the back of her head, and you're told to keep her down for the next 48 hours. Sure, OK.

IMG_2448(rev 1)And all she wants to know is when can she please go outside and play…and climb her favorite tree, the big Mulberry tree that she's been climbing since she was about a year old. The same one that her older brother had to climb up into and get her out over and over….until we finally got smart and taught her how to get down, too.

The Drama Queen is just that. She wants to try everything. She is all about living life to the fullest. The righter of wrongs. The sheriff of the house. The let's just have some fun child.

She loves to sing…and sing….and sing, especially if it's about her Lord.

She loves music…all of it.  Celtic Women, Bocelli, Selah, Barlow Girl, Newsboys, Celine Dion, and Journey (cause Mom really likes Journey.)

She loves to dance. She started a new dance class this week, so I've had the pleasure of listening to her tap away on the kitchen floor…over and over and over again. Because it annoys her siblings, so she waits until it's just the two of us. Yup.

She's all about fashion. It has to be shiny, or glittery, and of course, noticeable…because she's also all about that. And honest. Sometimes too much. She's had to learn a thing or two about humbleness and just because it's true does not mean you should say it.

She loves babies and can't wait until she can babysit all by herself.

She can make friends with just about anyone…and usually does.

She loves to talk on the phone and can't possibly understand why we won't let her have a cell phone…because, well, she needs it.

She wants to live life!

This is our Drama Queen. The wannabe pop star, actress, and doctor. Because, yes, she can do it all!

If you'd like to listen to some of her singing, click here.

Written by Mama Vivas · Categorized: Drama Queen, Faith, Family, Food Allergies/Gluten Free, Health, Humor, The Vivas Family!, Ya Gotta Read This One! · Tagged: dance, drama queen, food allergies, music, singing

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